Im not kidding, it really has been a funny old week.
Firstly, I won a surprise package from Studio Calico (en route to me as we speak). This came out of the blue and of course I am overjoyed. We all know scrappy crafty parcels are the best........even better than shoes and dare I say cake?
Secondly, I wont tickets to the Clothes show (worth £30 a ticket, I may add). Now as a Fashion Design student this is something that came in handy. As a treat I booked myself onto a beautiful guest house the night before only 2 miles from the NEC. Travelling on a Friday on the M6 is a flaming nightmare at the best of times and I wanted to be first in (or thereabouts). As the win was short notice, I couldn't even give the ticket away and plus as the country is pretty much snowed in, most of my friends that could have used the ticket wouldn't have got here anyway. So I went on my jack jones. It was OVERWHELMING. Ive been to the NEC a billion times for millions of events but I have never EVER been to a show as MASSIVE as this. Its even bigger than CHA - and CHA is enormous. I was exasperated. I didn't know where to start. Shop upon shop upon exhibit upon catwalk upon fashion shows - seriously, it made me a bit edgy. But there were some extremely beautiful displays and supplies all at my disposal.
I didn't see Gok but could have had the opportunity to meet Jeff Brazier (um, ok......wow?). Hardly a fashionista but there you go. My bloody luck. I did see Lee Stafford cutting the locks off a young girl plucked from the crowd only for me truly wishing I would be picked. Instead, I'm off to the hairdressers this afternoon to have another haircut as mine is getting on my proverbial wick. This is what I have planned. I hope I don't regret it in the morning. But I have to be sensible here, Im a momma first, designer second and sadly mature fashion student third and this should fit in all three categories. **nervous** The more I lose weight, the more I suit a pixie cut because fortunately I do have a very small head (ie small brains too, I guess!)
Thirdly, OMG, THIRDLY? Jesus, I didn't know where to start. Finally the go ahead for belles changes in school have materialised. Whilst over the years, my frustration has clouded my judgement of the schools co-operation, I am in fact in debt to their "behind the scenes" problem solving. I can't help but feel pissed off as a momma because being the tiger to my little cub, it means I have to roar more than your average momma. But anyway, the school have been more than forthcoming in Ellies favour and have given her the go ahead to attend a special unit on Tuesday for Personal Development and Life Skills and a Special College to take Floristry on a Wednesday. This means she will be ab attending three different units a week (including her mainstream school). I wept with joy at the meeting which was held with her SENCO and Deputy Head. This is life changing for Ellie in terms of socialisation and education. I can't help myself thinking its too little too late but hopefully these final years in school may forge an extension in education as I know children with needs like Ellies often means she can stay in Education until the age of 23 (fingers crossed). To say I am the happiest Momma on this planet is an understatement. **eyes filled with tears as I type**
Oh damn, I have a fourth bit of news. Bums, I forgot, well not actually because Mark and I are still fresh in the knowledge of this bit of news. Well anyway, about 5 weeks back Ellie went for Ultrasound testing on her muscles. It's never been done before and to be honest, SHOULD have been done in the early stages of her problems some 9 years ago. But still. The appointment to discuss the results wasn't scheduled until NEXT JUNE!!! Well, I couldn't wait that long, and tiger mode set in. I rang Ellie's consultants secretary to ask if we could have a telephone appointment to discuss the results and I even had to wait a month for that. Last night we got the call. I held my breath thinking "Just another lot of blarney" until he revealed that the results were what we secretly feared. The results showed an abnormality on her bi-laterals on both her calves and thighs. Whilst we are not shocked that there is abnormalities, it still stung. We have KNOWN for years, you know. I mean, you only have to see Ellie walking to know that something is not right. I didn't know whether to laugh, cry or freak out when he told us. The next course of action is another biopsy on the abnormal tissue in her muscles. She did have one when she was 6 but its apparent they took good muscle on that occasion and not the bad muscle on her bi-laterals. But then they didn't do an ultrasound for that, which would have been USEFUL back then. God! **breathe breathe**
My Doctor was AMAZING last night when he said that Neurology had advanced so much since Ellie was 6 and that I had to trust him. And I kind of do, actually. He said he would like to nominate Ellie for special research of which he is only allowed two out of this thousands of patients to do so. WE are honoured that he has appointed Ellie, we truly are and we will relish this new journey with much gratefulness. The biopsy takes 8 weeks to organise and will mean Ellie going under a general but we have been warned this is the LAST evasive operation that she will have.
I am in a right state if I am truthful - all these weird and wonderful things happening in one week. I like to enjoy one thing at a time and appreciate them fully with a clear mind but bloody hell, I am here, right now, bemuse and puzzled and feeling pretty bloody weirded out by it all. I just didn't think it would be possible to cram as much in my week as this one. And Im that freaked out I literally have come out in hives......I'm all itchy and blotchy. Hope my hair doesn't fall out from shock but then it might save me from a trip to the hairdressers, saving me £60!
Of course, I would like to thank my regular readers who will fully empathise with all this news. I hope you can identify just exactly how I am feeling because I sure as shit cannot convey it words effectively. Maybe give me a week and Ill give you a proper update.
Happy Saturday, people.
PS: The tree is going up this weekend - HOORAY!