By the way, my tweets were related to the Hospital trip we had today. It was awful because I didn't get to hear what we thought would be important (ie what they are planning to do with her scoliosis and muscle issues) but instead we get told that Ellie has a weight issue.
Shit, no? Really?
Ellie has had weight issues since she was 3 months old! She has FOREVER been classed as failure to thrive and NOW they want to do something about it? Man, I have wept buckets both in hospital and on the way home and when mark came home and even woke myself up from sleeping from a sad dream tonight feeling so sad about the way this all gets served up.
So now 6 months of meal supplements and extra calories ensue. I mean, that kid eats like a real trooper and yet her weight gain is so poor. I have BEGGED Doctors in the past to deal with it but they said they needed to monitor the muscle issues first. But because all of her tests are fruitless both in her nerves and brain only NOW do they focus on the weight. Plus - the killer crunch is if there is no sufficient weight gain during this 6 months she has to have a gastric tube fitted direct to her stomach. Well at that point I almost passed out.
But come on.......I mean - they finally decide all this NOW? What happened to 13 years ago or time between then and now?
Ok ok ok ok ok ok - rather than bore you all to tears with any more and believe me I know its something that some readers will think "God, will you shut up moaning" (and no, I wont but Im sick of hearing myself think today let alone type) Im leaving you with this lovely, warm and endearing youtube clip that transports me from my hideous pity party and instead makes me feel all floaty light
Valuable stuff, yeah?
Please share with me any clips you might have seen too :)