I honestly do not know how the NHS works but Ellie has been off school for 6 weeks and just as she is about to go back again, bugger me, 3 appointments for September arrive and all in school time. That's not including the one today.
I know people who read this see it as me just whining and moaning and guess what - they are right! Slurp, yes! It's my right to have a bit of a go because it something to have a go about, actually. Watch with interest readers, the blog posts about Ellie's journey is about to get really whingey.
Whilst I have issues and problems with lots of stuff in our lives and household, nothing penetrates my rag like our health service. Belle has an appointment today with an Endocrinologist (hormone's to you and I!). We have seen this doctor before (we shall call her Dr Diddy and Cute) and we had seen one 5 years ago in Leeds (we shall call him Dr Snarky) and more recently a nutty guy in Nevada. Dr Snarky in Leeds thought she had Coeliac but by reading his notes (and I have access to all Ellies notes) he wrote a pretty mean thing in there about me; basically insinuating that I knew nothing about the medical system and that I should stop interfering. How funny is that? I think as a mother you ought to stick your nose in everything concerning the NHS because if you do not ask you do not get and when you do ask - you still don't get. LOL! Dr Snarky had a sneaky hunch she had coeliac's but up until now there has been no evidence to suggest that. Dr Nuts in Vegas spieled off a ton of suggestions as to what she may have but one in particular was Laron syndrome but its quite evident Ellies doesn't have it. Saying that, Dr Fruit Loop is a very clever and interesting man and we love that he spared lots of interesting facts about our gorge daughter. Its just that, well, he is Loopy Nuts and funny with it!
Dr Diddy and Cute had previously weighed and measured Ellie but nothing really came of it and called us in again today for a follow up. Only Dr Diddy and Cute had been called away to an urgent matter in India so instead we saw Dr Lovely and Light. Dr Lovely and Light is really all her name suggests. Today she had told us Belle had put two pounds on since March (woohooooooo) and that she had read with interest all the notes from Nevada. Lovely I thought, its about time, we have been back since April. She was just perfect and nodded in agreeance and made suggestions elsewhere. Its just fantastic when a Doctor empathises with the frustrating issues you deal with, namely getting to the bottom of why Belle is like she is. Her main concern was Belle's weight and height ratio. Its not good really and to get an indication of what I mean, Belle has given me her permission to share this picture for you to get a grasp of why I whinge/piss/moan all the bloody time.
This isn't mean to shock you or for you to feel sorry for her, it doesnt shock us and we don't feel sorry for her (just want to help her and just to add - she eats like a little pigster!) but we know people nudge each other around a poolside and point at her. Some even have the audacity to shake their heads. Grrrrrrrr .
Now it was suggested in Nevada that Belle might benefit from two forms of scientific help with her growth. One is relatively inexpensive and is called Carnatine and the other, which costs almost $30,000 a YEAR in the US (not sure in this country), is Growth Hormones. I know that to receive growth hormones in this country it is based on a case in the most highest extreme because they are so expensive (and of which we are prepared to part or wholly fund from her sponsorship). Apparently, the most affluent of our nation can buy these privately for their children who they fear their kids will not be of acceptable height! We think Ellie is just grand as she is but the choice of whether she wants this is purely hers - she can decide if she wants to by a little tiddly wink or mainstream like you and I. It also depends on the next step with is gastroenterology (that is most deffo spelled wrong!). If that does become fruitful then growth hormones are likely to be offered to her which surprised me a great deal because they are not given our willy-nilly in the UK. Dr Lovely and Light gave us a wonderful run down of her thoughts and intended processes, quite unlike any Dr we have ever seen before. You know, it kind of makes me beet red when I think how lovely it would have been to have met her years ago. Her processes means investigation which leads to wanting blood. They are going to once and for all check fully for coeliac and enzyme deficiences which may be causing her dietary issues (and then thats only a weight query becuase she really does and actually eats - actually!)
But Blood? From Ellie? Oh bollocks.
Too late, Ellie had heard the word blood.and strated freaking out in her little chair and sweat dripped from her hands like water from a tap and hysteria set in. Oh god, I thought..... Not today as I promised her that there would be no hurts today. I asked Dr Lovely and Light if she could defer the samples until we meet with Dr We-have-never-met-such-a-fabulous-Neurologist-in-12 years next week, which gives us time to psyche Belle up for the draw.
Its all good in this house, really. Maybe frustrating at times but when you have Doctors on your side for a change, it has to be good - doesn't it?