Ladies Camera Club

17 Apr 2008

A breakthrough

**Before I go any further we have to make a confession**
We have just got back from Nevada after two weeks of probing and poking. The reason we did not mention it before is because it would have been licence for people in our locality to come and ransack the house. We feel pretty pooey about not making some big and amazing announcement of our departure on 2nd April but on the same token, we have come back to our house intact and secure in the knowledge that we did the right thing.
The family news we had to share is that Ellie has had her heart issue DIAGNOSED. Now there is a word! What's taken the NHS 6 years to not bother about took Dr Evans 2 minutes to tell us the problem. The money you helped raise went towards his brilliance plus the brilliance of Dr Morris, Dr Denton, Dr Rice and Dr Grimes.
We are waiting for bloods results at the genetics clinic to come through plus various tests to be further carried out in the UK before we can determine if she needs hormone or muscle building stimulants. Thats more diagnostics on the way!
So much going through our heads right now - not to mention an 8 hour jet lag after a 14 hour shift from vegas to JFK to Manchester. Belle is in bed as I update (its 1330hrs here), Im just about to take a snooze and then start on some work. Mark has unpacked and we have only been home an hour! There are 1330 photos to process, medical notes to read again and again and a cup of tea to sink before I hit the hay.
I will tell you all about it when I manage to come to terms with this wonderful thing called a diagnosis.
Before I go - I want to just wave a big hello to Ruth and Scott Denton. If it was not for their generous invitation to have access to all these amazing professionals in the US - we would not be floating on this cloud. These people are giving and kind and loving and adorable. They took to Ellie like their own child and allowed us to spends lots of time in their home with their fab kids and 3 equally superiffic Daschunds - Daisy, Rusty and Charlie.

58 comments:

Ami said...

So happy for you...

Eleanor said...

Oh my word. oh my blimmin word you darK (with a capital K for Kirsty) horse. A diagnosis. Jiminy cricket. Probably tough stuff to come too, but you're on the road to a hopefully healthier future for the elliegirlie. Yeehar. Big kiss to Ruth and family. Look forward to the story, the pics and anything else.
Ellie
xx

Clare said...

oh Em gee!

what wonderful news! I'm so happy for you all! And what wonderful news you're back too (I'll ring you tomorrow (evening)!

love Clare x

Jackie said...

OMG Kirsty that is such amazing news. It does make you wonder why every country cant have the same medical expertise? I hope it is all good news from now on for Ellie.

valerie said...

Thought your blog had been a bit "different" over the last couple of weeks!
So glad to hear that things went well in USA,look forward to hearing more.

valerie

a very tired mommy said...

am so happy that you have words on what's going on with your precious girlie. so much easier to swallow a pill if you know what it is...even if it's bitter.

hang in there!

anita said...

firstly...welcome home!!!
secondly...what great news that the trip was so successful! i'm looking forward to hearing all the stories and seeing some of those 1300 photos!

anita
x

Kay said...

You sneaky (but wise) thing!! I have indeed been stalking this blog every day waiting for your big news, hoping it was somthing like this.
You don't know me, but I am doing the happy dance for all of you right now. Fabulous, fabulous news :)

Anonymous said...

So good to hear that your trip yielded new ideas and information for Belle!!

Anonymous said...

How lovely to have a diagnosis. I always think that once you know the cause you can better deal with the issue. Bless you and yours and hope that your Ellie will continue to grow and get stronger.

Anonymous said...

hehe I had this feeling already :) Soooo happy that she has her diagnose and further testing is going ot be done, this is a huge step into the right direction and I couldn't be more happier for you and your family and most of all for Belle :)

corinnexxx

PBear said...

Welcome back! Glad it all went well x Helen

Gabi Butcher said...

Kirsty I'm so happy that you have news!!! And results, and diagnosis... thanks for the update and I hope Ellie had a great time there - I know there were a lot of poking and stuff done, but I also hope you guys enjoyed each other.

Keep us posted and be well.

Gabi Butcher

Jo said...

So pleased that you got some answers at long last

Jo xx

Anonymous said...

so pleased to hear youve got a diagnosis. so very pleased for you all xxx

Andrea said...

Wow ,fantastic, amazing what great news. Ive never posted before but have kept up to date via your blog for months. Belle is a beautiful girl and im soooo pleased for her. I hope so much that this means that things could potentially get better/easier for her,fingers crossed , and good for you for not giving up.

Andrea xxxxx

Anne J said...

That's marvellous, I am so pleased for you all. Love your blog and this is just fantastic. I hope you can move forward even more very soon x x x

Ali said...

Fab, fab news!!

SuzyB said...

Welcome home!!! Cant wait to hear/see all the news xx

Zoe said...

Can totally understand why you kept quiet. So glad you came back with some progress made; sending you lots of (((hugs))) x

Deanne said...

kirsty, mark and mainly Ellie
i wish id got the tissues before i read that post. I have cried and still am.
so proud of you all.
hugs x
cant wait for the updates xxx

Glee-scrap said...

A diagnosis! YeeHA! Words can not describe how happy I am that you are getting help from all those kind Dr.'s and their families.

D@nielle said...

super news, things can only get better for Ellie I'm sure of it. Hope the results come in soon !

D@nielle said...

super news, things can only get better for Ellie I'm sure of it. Hope the results come in soon !

Debs said...

Fan-bloody-tastic!!! its about time you had some good news like this!!! Oh I could do the happy dance for ya!!!
Ready for the next episode of a phone-a-thon soon then? LOL
Hugs to you all!!
xx

Rox said...

I am so happy for you in finding out so much information while visiting over here in the US! I can't imagine going without a diagnosis for so long. Hugs to Belle and you, too!.

em said...

Oh wow Kirsty. This is big. I'm glad the doctors and the people you met were so wonderful. I hope things go smoothly from here...

Jenny said...

How excellent Kirsty! The best news you could have hoped for. At makes the trip and everything lately worth it.

Rosie (Freycob) said...

Welcome home to the Kirsty clan!

Sounding good... can't wait to hear more about your fab news!

Rosie
x

P.S. You still of the wheat? I was naughty at the weekend and I'm paying for it!!!!

Anonymous said...

I have definitely been blessed in having the opportunity to meet you and your family. I wish we could have spent more time together! I had such a blast with all of you and Ellie will forever have a special place in my heart. Best wishes to you and yours...glad you made it home safe!!!! Hope to see you again soon!
Love,
Sara

P.S. Thank you for the amazing photo shoot!!!

jane said...

I knew where you were, I went to see what caches Mark had done! Didn't realise you were back so soon, I planned to come and burgle your house tomorrow. drat.

Brook said...

I am so glad that you are getting some answers! I hope the UK docs will be about to follow up and do what is best for your little lovie!

Terebene said...

Wow, a diagnosis!! What a relief that must be. Excited to hear about the whole thing (and I think it was wise not to post your absence.) Here's praying you have wonderful news from here on out. God bless.

Sinead said...

OMG what great news! A diagnosis gives you a place to start and something to fight--that's terrific! I can't wait to hear more and I'm ecstatic that the trip went well! (((HUGS))) to the bravest little trooper out there and 3 cheers for your happy family!

KEP said...

What great news! So happy for you all. Take care and loads of hugs for all of you.

Suzanne said...

Wonderful news Kirsty :) Onwards and upwards hopefully now :) xx

Amelie said...

i hope you're going to tell that stupid english doctor to stick his stethiscope up his...bottom.

i'm sooo happy for you three!
xxxx

heather said...

Fabbo news.

Anonymous said...

Welcome back. OMG did I miss you. Wonderful news from the US.

I would like to add that all this would not have been possible without the wonderful help and fund raising of the many crafters that visit this blog. You have all been sensational. Also not forgetting all the other kind strangers who have contributed no matter how small or large. Every penny has been gratefully received by Ellie, Kirsty and Mark.

As Ellie's 'Granna' I thank you all from the bottom of my heart.

Last but very much not least, thank you, thank you, thank you to Ruth, Scott and family (not forgetting daisy, rusty and chuck)for their love, care and attention to my loved ones whilst they were in the US and making all this become possible.

From a very humble
Mam and Granny

Roz said...

Yahooo, your home, so pleased the trip went well, can't wait to hear all about it. Sending you all massive hugs.

makeyesup said...

So happy that you are getting some good news for Ellie. My prayers are with you and your family.

Summerdayblues said...

Keep my fingers crossed for you that now you have a diagnosis a way can be found to help Ellie. Good luck!

amber jane said...

What fabby news - glad you are home and glad you finally got some answers babes xxx

Victoria said...

Woo hoo!! I am so happy for the Wiseman family. Hopefully, with this diagnose you can all tackle it and get on with life. God Bless that sweet little girl for all she has been through. Your family will continue to be in my prayers.

GlitteryKatie said...

fantastic news guys!!!

Jen said...

Oh drat - typed a huge comment and blogger swallowed it :( Anyway, welcome home, so happy for you. Can't wait to hear about the rest, the muscular bit and all. Great news!

Rach said...

Welcome home! Yay on the fab news - puts the NHS to shame and rightly so for royally cocking up for all this time.

Lots of hugs xxx

Cazzy said...

That is such good news and it was worth every penny to get to the bottom of this!

The only way is up now, looking forward to hearing more!

You must be so happy!

Ellie - we love you sweetie!

JenBreeze said...

I was wondering what was going on... Your writings lately seemed a bit off! I am so thrilled that you and your darling Ellie are stepping in the right direction! May the coming news continue to clear the haze you have lived in for so many years... Happy dance for you!

nancypinct said...

Yippee! How wonderful for Belle and for you! I am so happy for you. Now take care of each other and let us know what you can when you are able to. Yippeeeeee!

pmk said...

Fantastic news, so glad you've got a diagnosis. Hope you catch up on sleep soon!

Melissa said...

I am so happy that y'all have a diagnosis! Big hugs to you and your family.

sewsimple said...

Wonderful news!
Makes me ashamed to work for the NHS even though I am only ancillary staff
(seamstress)
Marie

Kristine said...

A diagnosis is wonderful news!!!! I'm thrilled for all of you but mostly Belle!
Hugs~
Kristine

kerry lynn said...

i am SO happy for belle, kirsty!! over the MOON happy!!

i know it's been a rough road but YOU persevered and you have made an amazing difference in her life bc YOU are an amazing mama and YOU didn't give up.

xoxo

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