I mentioned in my blog post that Belle was due to be examined today. This is the first step in our fight to get the statement of physical needs at school. She was not well at all and not up for examination but its a very important step that we can ill afford to lose time on. After the Doctor telling us that her height and weight is under the 0.1 centile (normally Ellie has been following the trend of 0.4 centile), I started to panic. We know she has always been underweight and short in stature but the fact she has dropped 3 centiles in a year is freaking me out. And you wouldn't believe the amount of food this kid puts away in her tummy. The examination lead to blood pressure and monitoring. I was puzzled why the doctor was spending such a long time listening to her heart. The doctor turned around and carefully stowed her stethescope into her pocket and barely gave me eye contact as she asked if Ellie had undergone an echo test on her heart. No, but 5 years ago Ellie started to create noises from within her rib cage that sounded like a sqeak in time with her heartbeat. We had begged for help from two heart specialists (after a referral from a Doctor who had heard it - just your average GP) 4 years ago. he thought is was a pre-cardial rub, a condition prevailant in over 50's. Upon referral to one heart specialist and upon entering his office he took one look at Ellie and then at me and told me he refused to examine or indeed treat a child who came to his clinic and did not have blue lips.
You think Im joking that he said that?
You bet your rump steak I am not.
(I tell you what, I could and will consider writing a book on NHS put downs...... like one Doctor almost 10 years ago told us that what we see is what we get with Belle.... Mum - you can vouch for that, you were with me **waves to my Mum and Dad who read this every day**).
The other Heart specialist refused to hear Ellies heart whilst she was under duress. Its either under duress or complete sedation that this noise occurs. The only way we could bring on duress was either cut her finger nails or brush her hair (which, sadly makes her cry). He thought it was inappropriate for us to cause this just so that we could proove that Ellies heart was making this really funny noise. We then figured that if had no concerns then we should have none too but you can imagine I was furious. But I had proof I wasn't going mad as both Mark, the initial GP and my Mum had witnessed such a sound.
So anyway. It turns out belle has a heart murmur which needs to be investigated. BRILLIANT. Just what she needs. That poor little sausage has done bugger all to anyone. She deals with so much and now she has to deal with this. I ask - can we take anymore? I myself have to go fro an ECG as it is on Monday. Its really not fair. So those who know anything about heart murmurs (without me freaking out by looking it up on Wikipedia), please tell me its just nothing. I tried asking today but I was just stunned. Poor Belle spent most of the interview/examination on my lap, asleep. She was hot but her face was pale and eyes really sunken. She really is full of cold right now. Im hoping the cold is just the cause behind this blip thourgh the docs stethescope. Please keep your fingers crossed. Will remain positive until then, just adding this to another piece of life's challenges :)
Breathe in. Exhale.
Who sent me another Enid Blyton book? I don't have a postal code so I have no idea where it is from. No note and thankfully no bomb inside the envelope. And not everyone has my address (just checking google to see if I am traceable). ok, just checked Im not really that traceable. well anyway, whoever sent it will you please own up so I can thank you properly with an Elsie type smoochy xx
And finally I just wanted to scream my head off at the package I got from Charmed Cards and Crafts who have asked me to whip some stuff up with a grand package of all grand packages with stuff I would NEVER buy. But paying close attention to the stuff I got, I will never let my BG snobbery impair my judgement ever again - thanks karen, you have restored my faith in this line of products xx